Comments on: Fibromyalgia: Invisible Disabilities

By: brightfeather

brightfeather — Fri, 07 Mar 2008 18:20:18 +0000

@Tammy
For us fibromyalgia folks acceptance and learning how to cope with the symptoms on a day-to-day basis is where it’s at. Thanks for the blog compliment and best wishes for happy blogging to you. :-)

pssst! Visit this blog – you’ll be glad you did http://fibromyowgia.wordpress.com

By: Tammy

Tammy — Fri, 07 Mar 2008 01:28:58 +0000

After 13 years, you’d think I wouldn’t take the time to take a quiz to tell me what I already know but curiously – I got a 100% which means I’m top rate too! Although I haven’t had a “pain free” day since around 1994 – I have some cool days where I forget about it and feel “young” and move easy for several hours.

The hardest thing is when someone draws attention to a limp or that I look like I’m working with a headache (which I was!) and think there must be a solution.

Some things can only be accepted and worked through.

Very nice blog and posts. I’ll be back.

By: this time ~ this space » Fibromyalgia Page Update

this time ~ this space » Fibromyalgia Page Update — Mon, 03 Mar 2008 19:54:57 +0000

[...] the two new links I have featured on the Fibromyalgia Page are to the most frequently read posts, next to [...]

By: brightfeather

brightfeather — Sat, 26 Jan 2008 18:54:55 +0000

Thanks Moonbeam. I don’t want to have a blog that “features” our shared health problem so, although I do a lot of research and reading I haven’t written posts on the topic aside from those listing research links. I have long since grown tired of explaining what fibromyalgia is like and what I can no longer do. This disease has completely changed my outdoor active lifestyle into an indoor and inactive lifestyle and I resent that. Resentment can fuel a negative attitude so I try not to indulge in it.

As you can see from your stats I also stop in and read your blog but I’m so introverted that I’m afraid you will have to forgive me for being a very poor commentator.

All the best :)

By: Moonbeam McQueen

Moonbeam McQueen — Sat, 26 Jan 2008 18:32:20 +0000

Brightfeather, I’m trying to catch up on my blog reading today. I won’t comment on all of your posts, but I really do love your blog. You often word things in ways that make me say, “Exactly!”

Example:

“I find fibromylagia to be an aggravating disease because the disabilities I suffer are frequently invisible to others and therefore, they expect more of me than what I can deliver.”

Thanks!

By: brightfeather

brightfeather — Mon, 07 Jan 2008 05:36:59 +0000

Richard
Although I do not welcome it, fibromyalgia is part of my life and will be with me until death. So, I’m truly honored to hear your genuine interest and to feel your empathy.

I have been feeling uncomfortable about sharing how I’m doing from day to day on my blog because sometimes when I have admitted my disabilities to others I have been the recipient of the most useless thing we can offer another person ie. pity. Worse still, is when I must endure a barrage of questions indicating the person is really trying to test me to see if me faking it or if I’m lazy.

In other cases, I have found myself having to explain the symptoms and syndromes and that’s ok, I guess, except that this usually occurs on a good day. And, not surprisingly, on a good day when I am mobile I prefer to forget I have a debilitating disease, at least, temporarily.

Thanks for commenting and for caring too. Please help yourself to the research and resource links that I will update from time to time.

Namaste